Raise awareness and funds to fight Huntington's Disease
May is HD Awareness Month and the perfect time to join the Huntington’s Disease (HD) Society of America in making a difference. The HDSA Las Vegas affiliate hosts a “Team Hope Walk” on Saturday, May 18, beginning and ending at Cleveland Clinic Lou Ruvo Center for Brain Health, 888 W. Bonneville Ave. Registration opens at 7 a.m. and is free of charge; the walk begins at 8 a.m. Individuals who raise $25 or more receive a “Team Hope Walk” t-shirt.
Participants receive food, drinks, entertainment and tours of the Cleveland Clinic. A silent auction featuring a mountain bike, NASCAR tickets and more raises additional funds for the HD Society.
Event honorees are Cleveland Clinic Center for Brain Health’s founder and CEO, Larry Ruvo, Dr. Ryan Walsh, MD, PhD, and the Cleveland Clinic Lou Ruvo Center for Brain Health.
Cleveland Clinic Lou Ruvo Center for Brain Health offers a dedicated Huntington’s Disease Comprehensive Clinic. The team includes healthcare providers from neurology, psychiatry, neuropsychology and physical therapy who work together to address the varied needs of patients with HD. The professionals address issues related to chorea (involuntary movements), depression, nutritional needs, fall risk, gait imbalance, safety in the home and more. Social services for patients and their caregivers are also available.“The whole point of our HD clinic is to comprehensively address the many challenges HD patients and their family caregivers face. This way, we can anticipate the development of symptoms, rather than simply react to them,” says Dr. Ryan Walsh.
More than 30,000 people throughout the United States are currently diagnosed with Huntington’s Disease (HD), for which there is no cure. Since HD is hereditary, another 250,000 individuals in the country are identified as at risk. HD results in the loss of cognitive, behavioral and physical control. The devastating disease slowly diminishes the affected individual’s ability to walk, think, talk and reason.
Parking for the HD Walk is available at The Smith Center for the Performing Arts, 361 Symphony Park Ave.
PHOTO: Dr. Ryan Walsh examines a patient in Cleveland Clinic’s Huntington’s Disease Comprehensive Clinic.